Tegan Tuesday: Scientists solve one part of the SIDS puzzle

I was probably around 5 when I first learned about Sudden Infant Death Syndrome (SIDS). A friend of the family, one year younger than I, had unusual sleep habits and I brought my new-found knowledge of him to my mother. I almost certainly wanted confirmation that I was the more-grown up with better habits than this friend, as I have been known to be petty and selfish, especially as a kid. My friend lived down the street with his family. Our moms were friends, and my sister and I often played with the three kids, so we naturally competed in a lot of ways. My mom instead told me how this friend, my sister’s playmate, was actually the fourth child born to his family, that the children had lost an older brother, the second child, before he turned one. That because of this mysterious, untreatable, unknowable disease that kills babies was now known to be part of this family, their mom had to fight to keep this youngest child alive. The third child was not affected by SIDS, but the youngest nearly died dozens if not hundreds of times, but was on monitors that would wake his mother up to save his life.

I remember it being one of the scariest things I had ever heard about. My great-grandmother lost a child to cradle death – as it was called in the 1930s – and according to family history, she blamed herself for what she might have done better until the day she died. I know that my mother’s friend, the mother of my friends, still feels guilt and shame for having saved one child but not two from this syndrome in 1985. And my mom told me how, because it comes to sleeping children under a certain age, there are a lot of recommendations about how to hopefully prevent such deaths. Limited blankets, pillows, or stuffed animals in the crib; no soft mattresses; only letting babies sleep on their back. I developed a horror of having my face covered during this time period, because what if I fell asleep and died? I still am uncomfortable sleeping without my nose breathing air beyond the covers, even though I am well beyond the range of SIDS! The Mayo Clinic still lists the sleeping guidelines I learned in the early 1990s as the recommended preventative for SIDS. With the syndrome being sudden and unexplained, there was very little conclusive research expanding beyond the knowledge of the ’80s and ’90s. In 1994, the US ran an education campaign called “Back to Sleep” that did successfully raise awareness of safe sleep practices and SIDS cases dropped by 53%. Even with this wide-spread knowledge, however, SIDS remains the leading cause of mortality for infants under 12 months in age, at a rate of approximately 1 in 1000 births per year. That was the state of things. Research continued, but it seemed like everyone was coming up empty, at least when it came to figuring out either causes or new preventative measures.

At least, it seemed like everyone was coming up empty until this year. An Australian research team (Carmel Harrington, Naz Al Hafid, and Karen Waters, of the SIDS and Sleep Apnoea Research Group of The Children’s Hospital in Westmead, New South Wales) was one of many that were frustrated with the limited information and comfort modern medicine could offer parents.

But many children whose parents took every precaution still died from SIDS. These parents were left with immense guilt, wondering if they could have prevented their baby’s death.

Dr. Carmel Harrington, the lead researcher for the study, was one of these parents. Her son unexpectedly and suddenly died as an infant 29 years ago. In an interview with the Australian Broadcasting Corporation (ABC), Harrington explained what she was told about the cause of her child’s death.

“Nobody could tell me. They just said it’s a tragedy. But it was a tragedy that didn’t sit well with my scientific brain.”

Since then, she’s worked to find the cause of SIDS, both for herself and for the medical community as a whole. She went on to explain why this discovery is so important for parents whose babies suffered from SIDS.

“These families can now live with the knowledge that this was not their fault,” she said.

It was already known that there were three factors that caused SIDS: a) environmental (such as the bedding); b) age (between 1 and 12 months of age); and c) biological susceptibility (yet to be determined, but suspected to relate to the body’s ability to wake). The new study, officially published in this June’s Lancet, demonstrates that they have started to crack the code finding a bio marker for those in danger of SIDS. Butyrylcholinesterase (BChE) is an enzyme that appears to be one part of the complex system that is autonomic function, specifically related to waking a sleeping body. In particular, it is one of the enzymes that hydrolyzes Acetylcholine (ACh), the primary neurotransmitter of the parasympathetic nervous system. In testing blood samples from 722 live births collected from 2016-2020 with 67 dead (26 SIDS and 41 non-SIDS), the research indicated that those infants who perished of SIDS showed lowered levels of BChE, while the non-SIDS deaths remained at the same levels as the control group. The blood samples were from the routine “heel prick” or Guthrie Test for a handful of dangerous diseases such as cystic fibrosis and phenylketonuria (PKU). As there is more than one enzyme regulating the ability to wake up, the researchers initially tested for both Acetylcholinesterase (AChE) and BChE, but the storage of samples denatured AChE beyond current ability to test.

Currently, this is as far as this new research has gone. The next stage in SIDS research around the globe will be to develop reliable tests to assess the risk to newborns before children have to die. In the meantime, it’s important to keep following safe sleeping practices for infants who’re at risk. Hopefully in the next decade, SIDS will be join the list of concerns tested with the heel prick!


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Tucker Carlson is a stochastic terrorist.

I don’t have a lot of energy today. Tegan came down with the same stomach bug as me, one day after, so while we both seem to be better, neither of us has gotten enough sleep. That means, of course, that today’s “content” is a video. In this case, it’s from David Doel at The Rational National:

Carlson has been increasingly blatant in pushing fascist propaganda, both the white supremacist “great replacement” bile mentioned in the video, and also the old-school tactic of making psuedo-leftist criticisms of capitalism, and then instead of real solutions, offering nationalism and bigotry as the answer. We know what follows from rhetoric like this, and I’m willing to bet Carlson knows it too. Just as I think his fascist content is made very deliberately, I also think he knows that his content will result in attacks like this, just as Bill O’Reilly knew the consequences of constantly calling George Tiller “the baby killer”. At this point, I think Occam’s Razor cuts in favor of malice as the explanation, rather than ignorance or incompetence.

Everything I’ve seen makes me think that this is the kind of result Carlson is looking for.

Edit: Just wanted to add this:

When I was one year old, the government of Philadelphia firebombed its own people

The United States is a country that was founded on white supremacy, and that has yet to actually address the myriad of atrocities and injustices that followed from that aspect of the nation’s founding. The current “CRT” panic from the right wing is a not-so-subtle effort to prevent the teaching of any history that might undermine fanatical patriotism, particularly among white students. From what I can tell, the conservative movement is horrified that people have been learning about things like the 1921 pogrom in Tulsa Oklahoma. Personally, I love to see it. Lately I’ve heard a lot of fascists online talking about their belief that history is cyclical, and that “their time” is coming, especially with the recent backlash against social progress. There’s a degree to which belief in such cycles can become a self-fulfilling prophecy. When you have hugely popular people like Joe Rogan spreading a mix of fatalism, bigotry, and machismo, and talking about ancient prophecies, I think there’s a real danger of people trying to create hard times, or at minimum shrugging off dangerous trends in society.

So I think it’s worth remembering both the kinds of things that can come from a racist law enforcement system, and remembering that this stuff is not remotely cyclical. Even a cursory glance at history shows “hard times” happening all over the world on any given date. Sadly, state violence against black neighborhoods didn’t end in the 1920s. On May 13th 1985, the Philedelphia Police Department firebombed a neighborhood:

In case it wasn’t clear, officials made the decision to let the fire spread:

In May 1985, after attempts to evict the group from its home in West Philadelphia, the city flew a helicopter over it and dropped a bomb. The explosives resulted in a raging fire, which the fire department refused to control. Various accounts suggest that police began shooting at members attempting to flee. Only two people escaped, and six adults and five children died in the blaze.

This is all bad enough, but because the U.S. is what it is, it gets worse. See – ordinarily when people die, regardless of the circumstances, their remains are treated according to the wishes of loved ones. It’s generally considered bad form to just… keep the remains without permission.

A forensic pathologist produced reports on the human remains found in the debris, including two sets of bones identified as belonging to Tree Africa, 14, and Delisha Africa, 12.

Mike Africa Jr., a current MOVE member who spent his childhood with the group, remembered Tree as fearless, someone who would find the tallest tree in the park and race to its peak. “No one could climb higher than she could,” he said in an interview this month. “She never feared the way up.” Delisha, he said, was always right behind her.

After an investigation into the bombing,the remains were given to anthropologist Alan Mann by the city Medical Examiner’s Office, according to the MOVE Philadelphia Special Investigation Commission letters, for further analysis. At the time, he worked at the University of Pennsylvania. When Mann transferred to Princeton University in 2001, he reportedly took the bones with him.

Researchers connected to the schools also used the girls’ bones in an online forensic anthropology teaching video, without permission of the relatives’ families.

That the MOVE bones were still being held by the universities was not widely known before revelations published this week by online news site Billy Penn. It has led to public outrage as controversy builds over American museums’ display and study of human remains. Just last week, the University of Pennsylvania’s Museum of Archaeology and Anthropology pledged to repatriate another group of problematic human remains known as the Morton Collection.

Philadelphia Mayor Jim Kenney said Thursday that he was “extremely disturbed” by the mishandling of the girls’ remains and that the city is reviewing its internal records from the time of the bombing.

On Thursday, MOVE member Pam Africa told The RemiX Morning Show her organization had never been contacted about the remains.

“None of these monsters have called one MOVE person,” Africa said. “Tree has a mother, Consuela Africa, who did 16 years in jail.”

Fortunately, last year the remains were found after Philadelphia’s health commissioner Thomas Farley was found to have ordered their destruction without notifying anyone – let alone the family. This stuff isn’t ancient history. I was a year old when this happened, and Farley’s attempt to destroy the remains was in 2017. White supremacy is still very much the default in how a lot of the United States operates. Black Americans have been saying this for decades, it has become pretty fucking clear in recent years just how right they were.

Right now the country is in the grips of a massive, well-funded effort to roll back as many civil rights as possible. Whatever you may have been told, the “moral arc of the universe” is a comforting fiction. There is no inevitable good outcome for us. If we want the world to get better, we have to understand what it was, what it is, and we have to work to make it into something that it never has been before.


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Are the rich safe from climate breakdown? Yes, and we should do something about that

Peter Kalmus is a climate scientist, and a climate activist. He’s doing work that’s desperately needed, and deserves our support. That said, I’m not sure whether I agree with how he framed a wildfire in California. The fire destroyed several multimillion dollar mansions near Laguna Beach on May 12th, prompting Kalmus to point out that the rich aren’t safe from Earth breakdown.

This feels like one of those times when something is technically correct – no human is safe from climate breakdown – but maybe less correct from both a practical and a tactical perspective. I admit that this may be a bit of a petty hair to split, but for some reason my brain hasn’t been cooperating today, but it’s happy to provide whatever this post is. I want to say again, because the internet seems to thrive on bullshit controversy, that I’m not “attacking” Peter Kalmus. If you want to categorize this post, you can view it as a well-meaning propagandist musing aloud about his craft. Ok? Ok.

There are three reasons why I think this post may be a little misguided. The first is that in practical terms, the rich are safe from climate breakdown. They’re safe from it in their heads, and their wealth will protect them from it for a long time. I think it’s fair to assume that everyone who owned those mansions had good insurance plans for them. Maybe there are some people with houses like that who would be ruined by the loss, but my impression is that for the most part, people with homes like that tend to have other homes in other locations. They can relocate without much difficulty. They might lose things of sentimental value, and they might even become slightly less wealthy, but that’s not the same as what happens when a normal person’s home burns.

The amount of safety will depend on how obscenely rich they are, but for the people at the top – the ones who could make a real difference on the climate issue if they cared to – it could well be more than a lifetime before their wealth runs out, if we don’t change how the world works, and take it away from them.

My second quibble is with what seems like an appeal to the wealthy. I see the value in trying to get those with power to do something, but I don’t think this accounts for who they really are – they’re people whose lives have demonstrated to them that they really can spend their way out of any problem. They are also people whose power and wealth came from having the means to make the world better, and choosing to enrich themselves instead. My impression of history is that they won’t learn the error of their ways until they are forced to by circumstance. If climate change is that circumstance, then it may be too late for the rest of us by then – it will take time for the wealthy to exhaust their resources.

Remember – these are people who can just buy themselves a state-of-the-art bunker on a whim, and stock it with a decade’s worth of food and water, without even considering where that money’s going to come from. They will try to create a neo-feudal climate hellscape with order enforced by paramilitaries fitted with shock collars, and by the time that fully falls apart on them, everything will be much, much worse. I don’t think they believe that they’re not safe, and I don’t think we can afford to wait for them to find out.

Finally, I worry that appeals like this perpetuate the idea that we have to ask our rulers to save the world. To quote Frederick Douglass, power concedes nothing without a demand, and I think the whole world will be far better off if we get our acts together and make that demand as soon as possible. The alternative is waiting until climate change scours away all of their power, and if that’s the path we take, they’ll use as many of us as human shields as possible to protect themselves. How many people will die by then? How much of our dwindling hope will be gone?

We should proceed as though the wealthy are safe from this global catastrophe, at least in the time frames that really matter right now. They’re safe for the same reason everyone else is not, and that should make us angry. They’re safe from climate change, and as long as that’s the case, humanity itself will continue to be in danger.


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Trees and grasslands are great and all, but wetlands are how the cool kids capture carbon!

I’ve made no secret of my belief that our best bet for carbon capture and storage is to use plants. They’ve got an efficient system for pulling carbon dioxide out of the air, and they turn it into cellulose, which can be used or stored in a variety of ways. It’s not that I oppose the more high-tech solutions, just that as it stands, we very much need to be using the tools we already have.

The most popular candidate for plant-based carbon capture tends to be trees, and it’s not hard to see why. With a tree, you can really believe that it’s storing a huge amount of carbon. It’s this big, heavy, solid thing that can sometimes last for centuries. It’s also not hard to believe that something that size would have a lot of mass underground to keep it upright. The runner-up in popularity is grasslands, which store pretty much all of their carbon underground, and seem to actually be a better ecosystem for carbon capture.

Now a new contestant has entered the race. Wetlands – long understood to be vitally important ecosystems, and dangerously under-valued –  appear to be even better for carbon capture than grasslands!

DURHAM, N.C. – Human activities such as marsh draining for agriculture and logging are increasingly eating away at saltwater and freshwater wetlands that cover only 1% of Earth’s surface but store more than 20% of all the climate-warming carbon dioxide absorbed by ecosystems worldwide.

A new study published May 5 in Science by a team of Dutch, American and German scientists shows that it’s not too late to reverse the losses.

The key to success, the paper’s authors say, is using innovative restoration practices — identified in the new paper — that replicate natural landscape-building processes and enhance the restored wetlands’ carbon-storing potential.

And doing it on a large scale.

“About 1 percent of the world’s wetlands are being lost each year to pollution or marsh draining for agriculture, development and other human activities,” said Brian R. Silliman, Rachel Carson Distinguished Professor of Marine Conservation Biology at Duke University, who coauthored the study.

“Once disturbed, these wetlands release enormous amounts of CO2 from their soils, accounting for about 5 percent of global CO2 emissions annually,” Silliman said. “Hundreds, even thousands of years of stored carbon are exposed to air and start to rapidly decompose and release greenhouse gases. The result is an invisible reverse waterfall of CO2  draining into the atmosphere. The wetlands switch from being carbon sinks to sources.”

“The good news is, we now know how to restore these wetlands at a scale that was never before possible and in a way that both stops this release of carbon and re-establishes the wetland’s carbon storing capacity,” he said.

What makes most wetlands so effective at carbon storage is that they are formed and held together by plants that grow close to each other, Silliman explained. Their dense above- and below-ground mats of stems and roots trap nutrient-rich debris and defend the soil against erosion or drying out — all of which helps the plants to grow better and the soil layer to build up, locking in a lot more CO2 in the process.

In the case of raised peat bogs, the process works a little differently, Silliman noted. Layers of living peat moss on the surface act as sponges, holding enormous amounts of rainwater that sustain its own growth and keeps a much thicker layer of dead peat moss below it permanently under water. This prevents the lower layer of peat, which can measure up to 10 meters thick, from drying out, decomposing, and releasing its stored carbon back into the atmosphere. As the living mosses gradually build up, the amount of carbon stored below ground continually grows.

Successful restorations must replicate these processes, he said.

“More than half of all wetland restorations fail because the landscape-forming properties of the plants are insufficiently taken into account,” said study coauthor Tjisse van der Heide of the Royal Institute for Sea Research and the University of Groningen in the Netherlands. Planting seedlings and plugs in orderly rows equidistant from each other may seem logical, but it’s counter-productive, he said.

“Restoration is much more successful when the plants are placed in large dense clumps, when their landscape-forming properties are mimicked, or simply when very large areas are restored in one go,” van der Heide said.

“Following this guidance will allow us to restore lost wetlands at a much larger scale and increase the odds that they will thrive and continue to store carbon and perform other vital ecosystem services for years to come,” Silliman said. “The plants win, the planet wins, we all win.”

Silliman and van der Heide conducted the new study with scientists from the Netherlands’ Royal Institute for Sea Research, Utrecht University, Radboud University, the University of Groningen, the University of Florida, Duke University, and Greifswald University.

By synthesizing data on carbon capture from recent scientific studies, they found that oceans and forests hold the most CO2 globally, followed by wetlands.

“But when we looked at the amount of CO2 stored per square meter, it turned out that wetlands store about five times more CO2 than forests and as much as 500 times more than oceans,” says Ralph Temmink, a researcher at Utrecht University, who was first author on the study.

Humanity has a complicated relationship with wetlands. They’re not very compatible with how we’ve been doing things recently, and they tend to produce vast amounts of biting insects. Whether or not you think it’s a good thing, filling in wetlands in the United States is part of why cities like Boston and New York City don’t have to struggle with the burdens of endemic malaria (mass insecticide use is probably a bigger reason, especially in the south).

That said, it makes sense that marshes would do well for carbon capture, since water isn’t a limitation on photosynthesis in that kind of environment. As part of reshaping how we interact with the ecosystems around us, I think we would do very well to find a better way to live with wetlands. What’s more, much of the world has access to another “natural tool” for creating wetlands!

When I put up that beaver video the other day, I mentioned on twitter that I think we should form a cooperative relationship with beavers the way we have with dogs. I was mostly joking, but the reality is that they are phenomenal at creating wetland ecosystems, when humans don’t mess with their water supply or kill them. Simply restoring them to their historic range – especially in Eurasia – would probably pay dividends in ecosystem health and carbon capture down the road.

At the same time, we can work with sea level rise to set ourselves up for better carbon capture in the decades to come. Part of re-locating low-lying coastal communities should be de-developing those areas on our way out. Pull out as much as possible in the way of reusable materials, and pollutants, and then look into reshaping the land and planting vegetation to encourage salt marshes to grow as the water rises.

As I keep saying, we have the resources and understanding to actually deal with climate change. That doesn’t mean it’ll be easy, even if we manage to overcome the political obstacles, but the possibilities presented by everything we know are vast. The odds are not in our favor, but I believe that far from settling for bare survival, we can still make a better world.


If you like the content of this blog, please share it around. If you like the blog and you have the means, please consider joining my lovely patrons in paying for the work that goes into it. Due to my immigration status, I’m currently prohibited from conventional wage labor, so for the next couple years at least this is going to be my only source of income. You can sign up for as little as $1 per month (though more is obviously welcome), to help us make ends meet – every little bit counts!

A video on part of the ADHD experience

I think it’s pretty common, in any area of activism or advocacy, to get passionate about something before you fully understand it. We look back on things we did years ago, and while we understand our reasoning at the time, we also can see how we’d do that differently today. Writing that sentence out, I think it probably applies to most aspects of life. It’s part of what we are, and it always will be, no matter how much we cringe at some of our memories. I think that kind of reflection is also an important part of who and what we are, and we live in a world that doesn’t often allow us to have time for it.

There are some things in this video that don’t fit my life one to one (I think that’s part of why I haven’t seen more than one or two videos from this channel, but some of this hits hard.

That feeling she describes – like I never get to actually have time off, because I haven’t “earned” it. That’s part of what made my salaried work at TERC so difficult towards the end – it wasn’t that I was doing worse or less work than others necessarily, it’s that the way I did it meant that I never really got time off, and no matter how many different techniques I tried to keep my brain in line, they’d only work for a short time, because they became a sort of hobby in themselves, until they just stopped working.

I’m working on a new novel now, in addition to this blog and my other fiction projects, and it’s going well. I’ve been able to maintain daily posting and work on fiction projects, all without burning out. That didn’t just happen out of nowhere – it happened when I managed to convince myself that time spent writing really, truly counted as “work”. I don’t know if I’ll be able to make ends meet with this. I am incredibly lucky in that I have a couple years in which there are almost no external forces determining my schedule, and while it took me a while to get into it, I’m finally able to write. I finally have the time and the energy to do the work that I want  to do, at my own pace. If I’m honest, the thought of having to go back to the way things were is horrifying. For all the good things in my life, it often didn’t feel like living. It felt like I was waiting to get my shit together, and then my life would start.

It felt that way all through my 20s, and most of the way through my 30s, even when I had a good job, a decent income, and good benefits. I got a brief taste of this life back in Somerville, when I took a little time off after leaving TERC, but I also had the threat of the U.S. healthcare system hovering over me. A big part of why I care so much about building a world where people get free time to themselves by default, is that that seems like the only way that people will ever be able to pursue happiness.

 

Green spaces are good for your brain.

I like greenery. I like the idea of cities that are covered in plant life, for a whole host of reasons, many of which I’ve gone into before. It’s fair to say that I’m already pretty convinced that this is a good idea, but now another piece of evidence has come along:

Published in the journal JAMA Network Open, the study found that exposure to greenspace around one’s home and surrounding neighborhood could improve processing speed and attention, as well as boost overall cognitive function. The results also showed that lowered depression may help explain the association between greenspace and cognition, bolstering previous research that has linked exposure to parks, community gardens, and other greenery with improved mental health.

“Some of the primary ways that nature may improve health is by helping people recover from psychological stress and by encouraging people to be outside socializing with friends, both of which boost mental health,” says study lead author Marcia Pescador Jimenez, an assistant professor of epidemiology. “This study is among the few to provide evidence that greenspace may benefit cognitive function in older ages. Our findings suggest that greenspace should be investigated as a potential population-level approach to improve cognitive function.”

For the study, Pescador Jimenez and colleagues from SPH, Harvard T.H. Chan School of Public Health, Brigham and Women’s Hospital, Harvard Medical School, and Rush Medical College estimated residential greenspace with a satellite image-based metric called the Normalized Difference Vegetation Index (NDVI). They measured psychomotor speed, attention, learning, and working memory among 13,594 women aged 61 on average and primarily White, from 2014 to 2016. The women were participants in the Nurses’ Health Study II, the second of three studies that are among the largest investigations into the risk factors for chronic diseases among US women.

Adjusting for age, race, and individual and neighborhood socioeconomic status, the researchers found that greenspace exposure was associated with psychomotor speed and attention, but not learning or working memory.

In addition to depression, the researchers also examined the potential roles of air pollution and physical activity in explaining the association between greenspace and cognitive function, and they were surprised to only find evidence of depression as a mediating factor.

“We theorize that depression might be an important mechanism through which green space may slow down cognitive decline, particularly among women, but our research is ongoing to better understand these mechanisms,” Pescador Jimenez says. “Based on these results, clinicians and public health authorities should consider green space exposure as a potential factor to reduce depression, and thus, boost cognition. Policymakers and urban planners should focus on adding more green space in everyday life to improve cognitive function.”

While the study shows evidence of this association, the greenspace metric that the researchers used to measure greenspace exposure does not differentiate between specific types of vegetation. In a new project funded by The National Institute on Aging, Pescador Jimenez will apply deep learning algorithms to Google Street View images to better understand which specific elements of greenery, such as trees or grass, could be the driving factors for health.

The researchers also hope that their study is replicated among other racial/ethnic populations and assesses associations with cognitive decline over longer periods of time.

“The distribution of green spaces in cities is not uniform,” says Pescador Jimenez. “Increasing everyday access to vegetation across vulnerable groups in urban cities is a crucial next step to achieve health equity.”

That last point is key. Not only is distribution of green spaces not uniform, but there’s also almost always a strong racial element in determining the healthiness of one’s surroundings. If you want more on that, Mano Singham did a good writeup to go with John Oliver’s video on environmental racism in the United States. Unfortunately the racial and economic microcosms we often see in my home country are often replicated at a global scale. This is part of why I focus so much on politics – if we can’t change how humanity is run, then even if we manage to survive climate change, we’re going to keep running ourselves into crisis after needless crisis. Among other things, I think that means improving the quality of life of those at the bottom, and uplifting the rest of us as they catch up, and resources allow. Improving where people live should be a big part of that.