Scientists at the National Institutes of Health have signed a declaration protesting the deep cuts in public health research and sent it to their boss Jay Bhattacharya, the head of the NIH, as well as to RFK, Jr., secretary of Health and Human Services, the cabinet office that oversees the NIH.
Named for the agency’s headquarters location in Maryland, the Bethesda Declaration details upheaval in the world’s premier public health research institution over the course of mere months.
It addresses the termination of 2,100 research grants valued at more than $12 billion and some of the human costs that have resulted, such as cutting off medication regimens to participants in clinical trials or leaving them with unmonitored device implants.
In one case, an NIH-supported study of multi-drug-resistant tuberculosis in Haiti had to be stopped, ceasing antibiotic treatment mid-course for patients.
In a number of cases, trials that were mostly completed were rendered useless without the money to finish and analyze the work, the letter says. “Ending a $5 million research study when it is 80% complete does not save $1 million,” it says, “it wastes $4 million.”
Jenna Norton, who oversees health disparity research at the agency’s National Institute of Diabetes and Digestive and Kidney Diseases, recently appeared at a forum by Sen. Angela Alsobrooks, D-Md., to talk about what’s happening at the NIH.
At the event, she masked to conceal her identity. Now the mask is off. She was a lead organizer of the declaration.
“I want people to know how bad things are at NIH,” Norton told The Associated Press.
…Employees from all 27 NIH institutes and centers gave their support to the declaration. Most who signed are intimately involved with evaluating and overseeing extramural research grants.
The letter asserts “NIH trials are being halted without regard to participant safety” and the agency is shirking commitments to trial participants who “braved personal risk to give the incredible gift of biological samples, understanding that their generosity would fuel scientific discovery and improve health.”

