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Why Burzynski matters

Craig Malisow doesn’t mince words in his blog post for Houston Press about his neighbors at the Burzynski Clinic. Maybe he’s hoping Marc Stephens will offer to threaten him too.

Here’s a warning for anyone out there considering blogging or tweeting anything questioning the greatness of cancer-curing Houston doc Stanislaw Burzynski: You will probably be threatened by the head of marketing for the Burzynski Patient Support Group.

We first heard about loose cannon Marc Stephens’s weird diatribes Monday, when a guy in England informed us that Stephens had earlier this month threatened 17-year-old Welsh blogger Rhys Morgan with a libel suit if Morgan didn’t remove any of his comments questioning the validity of Burzynski’s claims. Morgan is one of several bloggers around the world that Stephens has been threatening.

Giving the false impression he was an attorney representing the Burzynski Clinic, Stephens demanded Morgan “immediately cease and desist in your actions defaming and libeling my clients. Please allow this correspondence to serve as notice to you that published libelous and defamatory information.” Showing off his legal chops, Stephens busted out the all-caps to admonish Morgan that he best “GOVERN YOURSELF ACCORDINGLY.”

No words minced there. Loose cannon, weird diatribes, giving the false impression he was an attorney, and the sarcasm about his legal chops – those words are whole and entire.

We’ve left several messages for Burzynski Clinic spokeswoman Renee Trimble, trying to find out if they knew about — or approve of — Stephens’s actions, but we haven’t heard back. That’s what we call primo PR, Renee! Keep it up! We also e-mailed Stephens and have yet to hear back from him, either. But maybe we will as soon as he finds out that “third parties” read this blog. (Usually, we write for just first parties, and in some cases even second parties, but we figured this was deserving enough to reach out to that coveted third-party market.)

But then the joking stops. The Burzynski Clinic is not, fundamentally, a joke. It is deadly serious.

If you ever want to tinker with your notions of the existence of God, or of justice, then we suggest you talk to a father of a six-year-old girl dying of brain cancer.  That’s what we did a while back. He explained that, not being a rich man, and being warned of the severity and time-sensitive nature of his daughter’s condition, he was under the impression that he had one shot to save her life. One chance to liquidate every asset and every ounce of his life savings and put it all on one treatment, and hope it was the right one. Burzynski’s treatment would wipe him out financially, so if it didn’t work, he was afraid he wouldn’t be able to afford any other treatment.

And that’s basically what we’ve been wondering about this whole time. Burzynski fanatics like Stephens operate under this rubric whereby it’s some vast Big Pharma-doctor conspiracy to keep kids sick and prevent Burzynski from helping people. But we think it’s the exact opposite. In the past, when Burzynski had the opportunity to work with government-sponsored researchers and get on the path to get his treatment FDA-approved and covered by insurance, he aborted the study.

So instead, he just sits on what he claims is a remarkably effective cancer treatment, charging exorbitant amounts that most people have to mortgage their homes and sell everything they own to afford. In other words, he’s the only guy in the world with the cure, but he doesn’t want to give it away for free or share it with anyone else.

Not funny.

Comments

  1. Maria says

    I think you might want to take a look at this posting from Renee Trimble dated Nov 9th “learn how you can help stop the Texas Medical Board”
    http://houston.craigslist.org/pol/2693840114.html.

    I suppose a memo must have gone out to all organization members directing them to drum up as much support and quash criticism before Burzynski’s review.

  2. Maria says

    Oh yeah. These people should have gotten the memo that it’s not 1994. In this day and age, bullying and throwing baseless and brutish legal threats at your critics will not get you your expected results.

  3. Jon Jermey says

    I’d be more impressed with his list of supporting scientific publications if there weren’t so many Burzynskis in it.

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