An Example Of Getting It Right

A friend of mine told me about this new American TV Series ‘Ironside’ that has just started. I haven’t seen it yet so this isn’t a commentary post on the show. If in case you have, do share your views.

The plot looks interesting. An investigator who is a wheelchair user. And its nice to see a black man lead. Knowing about this show reminded me of a recently watched but not-so-recent film named ‘The Bone Collector’. It stars a black quadriplegic homicide detective, Lincoln Rhyme (Denzel Washington) and a white female patrol cop, Amelia Donaghy (Angelina Jolie). Here are a couple of things about the film that stood out and made it really worthwhile..

1. Black men as protagonists itself are not that usual, but a disabled black man? Only once I’ve seen that.

2. It was ‘HIS’ story. I’m not saying that simply having a disabled character means it should be all about them. But since he’s the lead here. And what’s impressive is that it was done properly. He wasn’t this inspiration porn trope where he ‘overcomes’ his disability by doing ‘amazing’ things or is simply there as some sort of a lesson for non-disabled characters (and non-disabled viewers indirectly). He was lively, happy, sad, angry, funny, etc and doing what he had to do. Neither were the disability-related hurdles he would naturally experience brushed aside. So as a character, he was complete.

3. Now usually what happens if there is a male disabled character is that the female gets portrayed as somehow double inferior than regular. I don’t know if I’m right, but I’ve felt this at times. It’s like their saying, ”See this guy is ‘disabled’. What woman would fall for him? Obviously a really “stupid” type!” That’s like hitting both of them (the man for his disability, and the woman for simply being female). I saw this movie in Malayalam just few days before seeing The Bone Collector (which could also be one of the reasons I immediately liked it). Same, main character is quad. But mainly there to ‘inspire’ others with his cheerfulness and happy-go-lucky attitude. Also it seemed like the writer made him disabled to get away with objectifying women. (”Because c’mon, poor disabled fellow, who cares if he’s sexist. He’s anyway not going to have a woman like him.”) Ugh! So this Rhyme-Amelia relationship was done well in that respect. It showed both their sides and their affection grew in the course of the film.

4. Bonus Point! Prominent and complex black character #2 – Thelma (Queen Latifah). Black and fat actually. And no, she wasn’t just sitting around eating or acting foolish. She was his nurse, a woman who was clever and resourceful.

5. The ending of the film was particularly good. When Richard Thompson, the killer, arrives at Rhyme’s house with the intention of killing him, Rhyme puts up a very practical fight and causes serious injury to his opponent. He wasn’t simply killed with no sign of resistence. Instead, he fought on until Amelia suddenly arrived at the apartment and shot Thompson down.

One minor complaint I had with the film was that initially Amelia had to be given directions for the even the most basic stuff like picking up some evidence on the crime scene (which one would think is lesson #1 in training academy for cops?) Guess they just wanted to show Rhyme’s character as ‘dynamic’ and ‘big bossy’ (as a man). That was unnecessary, but thankfully Amelia’s character evolved later on.

Being happy and having a positive attitude towards life is essential for anyone’s mental peace. No denying that. Likewise, demeaning and insulting words being thrown at disabled people is also no less of a reality. But what differentiates the portrayal of these from reinforcing negative attitudes is how they are responded to in the very same films. If the character, who is obviously living in an ableist environment, appears to be constantly happy and not showing any resentment towards the oppression they face, then it means the oppression is normalized, it’s no big deal. If hurtful and insulting dialogues are met with silent acceptance (or worse, laughter), then it’s just a big screen reminder (or celebration) of the actual prejudices that actually exist. So I think its important to show *some* of the marginalizations at least. Otherwise it becomes unrealistic. And unrelatable for the ‘real’ people with those disabilities. Which means, in reality, their stories are still waiting to be told.

The (Non-existent) Right to Die in India

What I’d like to do with this post is explore the current legal position on the right to die in India and a little bit about why the issue is so controversial (biased, of course, to reflect personal opinion). To start out, the right to die as an absolute is not provided for under the Indian legal system. The right to life under our constitution does not expressly include the right to die, nor has it been interpreted to include the right to die, although an attempt was made to do so at one point of time by the Supreme Court in this case – the judgement was thereafter overruled in Gian Kaur v. State of Punjab. The judgement in the former argued that “a person cannot be forced to enjoy right to life to his detriment, disadvantage or disliking”. In Gian Kaur, on the other hand, the Supreme Court ruled that suicide, as an unnatural termination of life was incompatible with the basic idea of the “right to life”. While the decision does contemplate the possibility of accelerating the death of a terminally ill patient, no substantial exception was carved out in the judgement to permit euthanasia under the Indian legal regime. Moreover, an attempt to commit suicide and abetment of such an attempt are both criminal acts under our penal code.

That being said, a little bit about euthanasia: euthanasia can be either active or

A euthanasia machine administers a lethal dose of drugs when a person answers "yes" to a series of questions on the lap-top screen. (Image links to source).

A euthanasia machine that administers a lethal dose of drugs when a person answers “yes” to a series of questions on a lap-top screen. (Image links to source).

passive, it can also be voluntary, involuntary or mandatory. Active euthanasia is when someone uses a lethal substance or active use of force to end the life of another or oneself. Passive euthanasia is where treatment is withheld from a terminally ill patient, thereby leading inevitably to the patient’s death. Voluntary euthanasia, as the name would suggest, involves euthanasia of a consenting person. Involuntary involves terminating the life of a person who is incapable of giving consent. Mandatory euthanasia involves termination of the life of a person who does not consent or whose consent has not been sought. Passive euthanasia is completely legal. I have the absolute right to refuse treatment for any medical condition and refuse to prolong my life if I so desire. Which takes us to the living wills question, but I’ll get to that in a bit.

While a substantial portion of the objections against euthanasia are based on religion, there are more secular arguments that find their way into the debate. One major argument is that of the slippery slope: Permitting voluntary and active euthanasia could easily lead us down the slippery slope of legalising involuntary and mandatory euthanasia as well. There are An oft cited example in support of this argument is Action T4– the euthanasia programme that was run in Nazi Germany under which those judged to be critically sick (this included mental and physical disabilities) were put to death in the eugenic hope of cleansing the citizenry (and future generations) of what were considered to be undesirable genetic flaws. Unfortunately for advocates of euthanasia today, this programme was based on ideas that slowly gathered momentum through the first half of the 20th century and eventually led down the slippery slope of mass killings under the head of euthanasia. There’s a paper dealing with this issue here for those who would like to read it. Indeed, these ideas of killing ‘useless eaters’ are not restricted to the last century but seem to have been retained in this century as well, with people being comfortable voicing (publicly in newspapers, no less) opinions that disabled children ought to be euthanised. The reality is that the slippery slope is a very real possibility. That not only holds true for places where euthanasia is legal, but with other countries as well – reports of deaths caused due to negligence of medical practitioners state that the negligence can be seen to be directly proportional to the extent of disability in the patient.

Another argument against euthanasia based on similar lines is the fact that most countries that permit voluntary active require a patient to be suffering from either a ‘terminal illness’ or an ‘incurable disability’ in addition to suffering unbearably and unrelievably for permitting active euthanasia. It has been argued that the inclusion of ‘incurable disability’ as a marker devalues the lives of people living with incurable disabilities by adjudging such lives as being “worthy of termination” and therefore, not worthy of being lived. This leads to the idea that disabilities and the lives of persons with disabilities are intrinsically undesirable, and less valuable than the lives of able bodied persons.The idea of promoting self-determination in cases of voluntary euthanasia due to severe disability has also been subject to substantial criticism, primarily from disability rights groups (further reading here). The social construct model of disability provides the explanation for this: that ableism (and the detrimental consequences of living in an overtly ableist world) is the primary reason for any disabled person to believe that life with disability is not worth living and therefore, determine that euthanasia is the solution. Further, since the legality of euthanasia (as seen in countries that permit it) is regulated to circumstances beyond the mere will of the persons seeking to terminate their lives, self determination is hardly an argument worth making: the regulations clearly indicate that other people ought not consider such a step, thereby imputing hat their lives are more “valuable”.

Moving on to the question of living wills: as mentioned earlier, every person has the right to refuse treatment of any kind. However, in the event of a person’s incapacity to communicate this to the medical care provider, there is no legal provision for a living will in India. Most states in the US, for instance, have a provision for living wills to be lodged with an online registry that keeps a database of these wills. Many people also appoint others to make their decisions for them in case of emergency. Medical practitioners are provided access to the living wills of their patients lodged in registries and are then legally bound to act in accordance with the patient’s express will. While a person is free to provide instructions for such an eventuality, the person will have to depend on the next of kin to uphold the patient’s wishes. Since there has been no authoritative legal source in India stating that living wills are binding, a living will may not actually work on its own. Ideally, the best way to ensure that your wishes are honoured is to let your next of kin and / or family know what you’d like done in such a situation, as long as you trust them enough to carry it out. When that isn’t possible, however, it may be possible to contract out the decision to a person you trust, an agency of sorts, and keep them as your emergency contact – though it’s still not certain to be enforceable, given the lack of legal clarity on the issue. While that’s far from being a comfortable solution, until lobbying pays off and a legislation is enacted on the subject, it’s the best we’ve got.

Have You Brought Your Disability? Here’s Your Double Standard.

I want you to picture this hypothetical scenario. Upon arriving at the destination, a woman is about to get out of the car. One of the lesser known persons waiting outside lends his hand offering to help which she politely refuses. A moment later as she’s almost done, he suddenly grabs her inappropriately under the shoulder and pulls her out, ignoring that she had declined and making her uncomfortable. What would you call this act? Disrespect? Harassment? Some may say groping, depending upon the nature of contact and gender dimensions involved. Most people, however, would surely agree it is unacceptable behaviour to touch another person like that without their consent. They would probably express their disagreement by openly questioning his action.

Now imagine the situation happening for real. Only this time, she was getting out of the car and transferring onto her wheelchair. The same incident took place but nobody in the scene showed any objection. Why would they when they don’t see it as problematic? When all of it was seen as natural or even ‘good’ conduct? No one confronted the man’s behaviour. Neither did I. All I could do later on was wishing the anger and frustration had hit me before the pain and humiliation. Yes, I’m that disabled woman.

And why pain? Because this isn’t the first time I’ve experienced lack of consideration for personal boundaries from others, nor mine an isolated or rare incident for a disabled person. Meeting someone with a visible disability it seems is a free golden ticket for many to break away from those darned social norms they otherwise have to follow as civil beings. Unwarranted pats, strangers inquiring about my impairment before even asking my name, women I meet for the first time wanting to examine my hands or legs.. all that had become so routine that until the age of 19 I didn’t recognize the oppression of it and used to feel guilty when at times I refused participation. Like somehow I owed it to them. Had the above mentioned incident happened to a non-disabled woman, the conversation would have immediately (and rightfully) been on indecency, violation of consent, unsafe environments, and every other argument that points in the direction of disrespecting autonomy and infringement of bodily integrity. But add disability to the equation and the very same reasoning gets replaced with muddled excuses or efforts to frame it as an overreaction to a not-so-serious issue. I can almost hear it.

“But he was just trying to help you.”
“I think it was made clear I didn’t need it. Besides if you really want to help someone, isn’t following their reaction the right way to do it?”

“I’m sure his intentions weren’t bad.”
“Maybe not. But intentions aren’t always necessary for something to be inappropriate. I could attempt to insult a man by calling him a pussy and it would still be sexist even if engaging in sexism wasn’t the plan on my mind.”

“Ok so you’re disabled and now you’re saying you shouldn’t be assisted? Isn’t that being arrogant?”
“I didn’t say I wouldn’t ever want any help. I’m just saying I didn’t require it in this particular case. What he did was the opposite, it was hurt. Please understand the difference.”

“Fine, I get that it must have been bad for you. Now just let it go. Why are we even talking about this?”
I don’t know, maybe because for a brief moment I had the delusion I was equally human…


Let’s have a look at this in the larger social context. Study after study show that women with disabilities are twice as likely to experience domestic violence and other forms of gender-based and sexual violence than non-disabled women, are likely to experience abuse over a longer period of time and to suffer more severe injuries as a result of the violence. Similar but more often than non-disabled women, their abuser is someone close to them. It could be their guardian, spouce, relative or caregiver. [Quoting one of the links] “Frequently they do not report the violence. Institutions of the justice system are often physically inaccessible and do not provide reasonable accommodation, they often lack access to legal protection and representation, law enforcement officials and the legal community are ill-equipped to address the violence, their testimony is often not viewed as credible by the justice system and they are not privy to the same information available to non-disabled women.”

Yet response to this obvious reality remains quite minimal. The mainstream media and larger public while becoming increasingly conscious and giving more visibility to awareness generation regarding gender issues, are yet to turn proper attention towards those affecting disabled women. What are the reasons they face such discrimination? According to the same study, “women and girls with disabilities are at high risk of gender-based and other forms of violence based on social stereotypes and biases that attempt to dehumanize or infantilize them, exclude or isolate them, target them for sexual and other forms of violence, and put them at greater risk of institutionalized violence.”

And how do we know that? From countless experiences like the one above.



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