All of a sudden, several of my acquaintances are writing books on really interesting subjects. Dale McGowan is writing one on mixed-religion marriages (like my parents), Bridget Gaudette is writing one on parental disownment, and Ania Bula is writing one on chronic illnesses and how to deal with both our broken health care system and the vast range of non-scientific, homeopathic remedies. Here’s part of her story:
When I was 18, I was diagnosed with Psoriatic Arthritis. The following year, I lost the ability to walk, and was ignored by doctors who looked at my age before my symptoms. I struggled with finding a treatment and getting some mobility back.
When I was 20, I started experiencing some mysterious symptoms, including rapid weight loss, pain, bleeding, and more. I desperately searched for an answer, and eventually, a treatment.
The journey itself, to diagnosis and treatment was incredible, difficult, and enlightening. Living with the disorders has been eye opening as well. Chronic illness is an invitation for everyone to comment: either with regards to a cause, a treatment, or otherwise. Suddenly, everyone’s aunt is an expert and everyone’s fad diet a cure. You wade through a constant stream of ignorance and lies, in a desperate attempt to find peace and a stop to pain. In my years living with both disorders I have been faith healed, poked, prodded, stuffed with powders and magic potions, and now is my opportunity to tell everyone about it.
The book is titled Young, Sick and Invisible: A Skeptic’s Journey With Chronic Illness. You can read more about it here, including the opportunity to donate to help make the project a reality or just a chance to share it with others.